Society and Ethics Research Group | Connecting Science

Society and Ethics Research Group | Connecting Science

Society and Ethics Research Group

Our Research and Approach

The Social Sciences and Ethics research group is part of Connecting Science, along with Public Engagement and Courses and Conferences. It is a Wellcome Genome Campus group run by Dr Anna Middleton. Anna also runs the GenomEthics study that forms part of the Deciphering Developmental Disorders project at the Wellcome Trust Sanger Institute.

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Middleton, Anna
Dr Anna Middleton, PhD MSc RGC
Group Leader

An entrepreneurial researcher who designs and delivers cutting edge social science research for the Wellcome Genome Campus.

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Internal Partners


  • Attitudes of nearly 7000 health professionals, genomic researchers and publics toward the return of incidental results from sequencing research.

    Middleton A, Morley KI, Bragin E, Firth HV, Hurles ME et al.

    European journal of human genetics : EJHG 2016;24;1;21-9

  • Potential research participants support the return of raw sequence data.

    Middleton A, Wright CF, Morley KI, Bragin E, Firth HV et al.

    Journal of medical genetics 2015;52;8;571-4

  • Genetic diagnosis of developmental disorders in the DDD study: a scalable analysis of genome-wide research data.

    Wright CF, Fitzgerald TW, Jones WD, Clayton S, McRae JF et al.

    Lancet (London, England) 2015;385;9975;1305-14

  • No expectation to share incidental findings in genomic research.

    Middleton A, Morley KI, Bragin E, Firth HV, Hurles ME et al.

    Lancet (London, England) 2015;385;9975;1289-90

  • Large-scale discovery of novel genetic causes of developmental disorders.

    Deciphering Developmental Disorders Study

    Nature 2015;519;7542;223-8

  • Genetic counselors and Genomic Counseling in the United Kingdom.

    Middleton A, Hall G and Patch C

    Molecular genetics & genomic medicine 2015;3;2;79-83

  • Synaptic, transcriptional and chromatin genes disrupted in autism.

    De Rubeis S, He X, Goldberg AP, Poultney CS, Samocha K et al.

    Nature 2014;515;7526;209-15

  • Position statement on opportunistic genomic screening from the Association of Genetic Nurses and Counsellors (UK and Ireland).

    Middleton A, Patch C, Wiggins J, Barnes K, Crawford G et al.

    European journal of human genetics : EJHG 2014;22;8;955-6

  • Policy challenges of clinical genome sequencing.

    Wright CF, Middleton A, Burton H, Cunningham F, Humphries SE et al.

    BMJ (Clinical research ed.) 2013;347;f6845

  • Empirical research on the ethics of genomic research.

    Middleton A, Parker M, Wright CF, Bragin E, Hurles ME and DDD Study

    American journal of medical genetics. Part A 2013;161A;8;2099-101

  • Communication about DTC testing: commentary on a 'family experience of personal genomics'.

    Middleton A

    Journal of genetic counseling 2012;21;3;392-8

  • Communicating in a healthcare setting with people who have hearing loss.

    Middleton A, Niruban A, Girling G and Myint PK

    BMJ (Clinical research ed.) 2010;341;c4672

  • Preferences for communication in clinic from deaf people: a cross-sectional study.

    Middleton A, Turner GH, Bitner-Glindzicz M, Lewis P, Richards M et al.

    Journal of evaluation in clinical practice 2010;16;4;811-7

  • Reproductive liberty and deafness: Clause 14(4)(9) of embryo bill should be amended or deleted.

    Emery S, Burke TB, Middleton A, Belk R and Turner G

    BMJ (Clinical research ed.) 2008;336;7651;976

  • Providing a transcultural genetic counseling service in the UK.

    Middleton A, Robson F, Burnell L and Ahmed M

    Journal of genetic counseling 2007;16;5;567-82

  • Editorial on supervision.

    Middleton A, Cowley L and Clarke A

    Journal of genetic counseling 2007;16;2;123-5

  • Reflections on the experience of counseling supervision by a team of genetic counselors from the UK.

    Middleton A, Wiles V, Kershaw A, Everest S, Downing S et al.

    Journal of genetic counseling 2007;16;2;143-55

  • Report from the UK and Eire Association of Genetic Nurses and Counsellors (AGNC) supervision working group on genetic counselling supervision.

    Clarke A, Middleton A, Cowley L, Guilbert P, Macleod R et al.

    Journal of genetic counseling 2007;16;2;127-42

  • Tailoring genetic information and services to clients' culture, knowledge and language level.

    Middleton A, Ahmed M and Levene S

    Nursing standard (Royal College of Nursing (Great Britain) : 1987) 2005;20;2;52-6